These are links to all my blog posts related to my experience with Hodgkin's Lymphoma, a type of cancer that is very treatable. While some people prefer to keep such matters private, I felt it would help me to keep friends and family informed of my progress. It's also sometimes nice to go back and re-read what I wrote and what I went through. To make that easier, and for people who didn't know I had cancer, I've created this repository of links to all the relevant blog posts. (All links will open in a new window.)
Here are the pertinent details:
Hodgkin's Lymphoma (also called "Hodgkin Lymphoma" or "Hodgkin's Disease")
Stage IIa, nodular sclerosing
Diagnosed December 2004 (age 24)
Prescribed 6 cycles (months) of ABVD chemotherapy plus 4 weeks radiation
ABVD = adriamycin, bleomycin, vinblastine, and dacarbazine
Adverse lung reaction to bleomycin; discontinued bleomycin for remaining 2.5 cycles
Finished chemo June 2005
Finished radiation July 25, 2005
With this treatment (the gold standard, developed in Italy in the 1970s) 85-90% of Hodgkin's patients never have cancer again. However, both the chemo and radiation can lead to secondary cancers (especially lung cancer) among those other 10-15%. The bleomycin can cause lung problems later in life -- it did for me during treatment, and we had to discontinue that drug. Hodgkin's is more common in men age 15-35 and over 55. It has no known cause.
All patients react to the drugs a little differently, but with the help of anti-nausea steroids like Kytril, I endured the chemo fairly well. I never once felt nauseous as a result of the chemo (only anxiety a few times). I had to give myself a growth factor shot (Neupogen) every day for seven days after each chemo session so my white blood cell count would be high enough in time for the next treatment. As the months wore on, I would feel lethargic after each treatment sooner and sooner, for about a day and a half. I became increasingly indecisive and "spaced out" on those days, and it became hard even to decide what to eat for lunch.
After I was done with chemo and radiation, I had CAT scans every four months for two years to check for new growth. I will then have some combination of CAT scans, chest X-rays, and/or blood tests every six months for five years. My normal energy level came back almost immediately, and I have felt fine since. My oncologist (cancer doctor) attributes this to my age, since some people take as much as five years before they are back to their pre-cancer energy levels.
11/17/04: lump
11/18/04: still plenty of unknowns, but it doesn't look good
11/19/04: biopsy
11/20/04: blood test results
11/23/04: consultation
11/24/04: well that took all day
11/30/04: biopsy results
12/1/04: yet more tests
12/2/04: um, ow
12/3/04: much better
12/5/04: still here
12/8/04: result of today's visit
12/9/04: some more info
12/18/04: chemo starts wednesday
12/20/04: abvd
12/22/04: long farkin' day
12/23/04: nothin'
12/24/04: lethhhhhhhhhhhhhargy
12/27/04: feeling better
12/28/04: blood donation
1/5/05: no chemo today
1/10/05: and the hair comes out
1/14/05: insurance drama
1/27/05: chemo, round 3
2/12/05: round 4
2/23/05: ugh. could I get some retroactive mojo please?
3/4/05: good news
3/12/05: halfway there!
3/23/05: chemo #7........ tired
4/4/05: admitted to the hospital
4/7/05: back home
4/8/05: Update on me
4/13/05: chemo round 8 scheduled for today
4/13/05: no more bleo
4/29/05: chemo -- only three more to go! (hopefully)
5/13/05: so, so tired
6/11/05: i hope that was the last one
6/21/05: NO MORE CHEMO
6/22/05: a bit more information
6/23/05: no more chemo!
6/27/05: rads
7/11/05: haircut
7/12/05: blockage
7/13/05: wince
7/20/05: better
7/22/05: better yet
7/25/05: IT'S OVER!!!
8/3/05: cancer research
8/9/05: measles and hodgkin's?
8/20/05: feeling fine
8/30/05: the "moral hazard" of healthcare
10/21/05: arrgh, stupid chemo
10/25/05: we now return to your regularly scheduled life, already in progress
1/6/06: i got a raise!
3/12/06: it's like nothing happened
6/14/06: good with the bad
7/18/06: Cleveland Clinic: #13 cancer hospital in the country
10/9/06: pac-me
10/17/06: CAT results today
3/19/07: meow
7/6/07: relay for life coming soon!
7/16/07: the 16,000th performance of CATSSSssscan
7/24/07: happy cancerversary
8/4/07: new development in the treatment of hodgkin's lymphoma
1/25/08: posting, to make Laurie happy
7/8/08: three years out